Tools & Resources

Through the creation of a patient safety program, the King’s hope is to help prevent this from ever happening to another child. The Josie King Pediatric Patient Safety Program at the Johns Hopkins Children’s Center will identify safety concerns, revise medical education to sharpen focus on proactive safety measures, and empower families to assume equal partnership in their child’s care.If you are interested in the Josie King Video, tapes or DVDs may be ordered at: http://www.josieking.org/index.html or by contacting Sorrel King directly at sking6137@comcast.net.

The Parents of Infants and Children with Kernicterus is organized exclusively for charitable, scientific and educational purposes, more specifically to:

• prevent kernicterus through a universal system wide program of education, objective screening, follow up, diagnosis and treatment
• provide information and support to families
• identify effective therapies and treatment that could improve the quality of life for children and adults with kernicterus
• implement a structure of accountability for reported cases of hyperbilirubinemia

The Community Emergency Healthcare Initiative is a non-profit effort which was created to serve caregivers in small community hospitals delivering frontline emergency services.
CEHI has been established in loving memory of former astronaut Charles “Pete” Conrad.

PULSE is a nonprofit, 501(c)(3) organization working to improve patient safety and reduce the rate of medical errors using real life stories and experiences. Survivors of medical errors are encouraged to use their experience to educate the community and advocate for a safer healthcare system. PULSE is dedicated to raising awareness about patient safety and reducing medical errors through advocacy, education and support.

The Empowered Patient Coalition is a 501(c)(3) charitable organization created by patient advocates devoted to helping the public improve the quality and the safety of their healthcare. The coalition feels strongly that the first crucial steps in both patient empowerment and patient safety efforts are information and education. The public is increasingly aware that they must assume a greater role in health care issues but they need tools, strategies and support to assist them in becoming informed and engaged medical consumers who are able to make a positive impact on health care safety.

Citizens for Patient Safety is a global grassroots organization. The agency builds alliances between and within diverse communities united in a common purpose, by building bridges among consumers, the medical community, insurance, and the legal community to improve the healthcare system and quality that patients receive.

A blog about patient empowerment, advocacy, safety, consumerism and tools to navigate the dysfunction of American healthcare.

Take healthcare into your own hands. Get information on finding insurance options; get prevention tips; compare care quality; understanding the law; and more.

The image gently Campaign is an initiative of the Alliance for Radiation Safety in Pediatric Imaging. The campaign goal is to change practice by increasing awareness of the opportunities to promote radiation protection in the imaging of children.